New Evidence: What Makes Communication Support Work for Adults with Learning Disabilities?

Good communication underpins choice, relationships and wellbeing, yet the evidence for what actually works in long-term care has been thin. A new King’s College London blog by research assistant Emily Urwin sets out early findings from the Improving Communication with Adults with Learning Disabilities (ICALD) programme, and it’s worth ten minutes of your time.

The team ran a realist review of the evidence, checked against the experience of people with learning disabilities, carers and professionals, then built on it through workshops, focus groups and interviews to map a Theory of Change for improving practice.

 

Key takeaways:

  • Communication works best when staff hold genuine regard for a person’s ability to communicate and take time to know them beyond task-focused care.
  • It should support enjoyment and shared experience, not just meeting wants and needs.
  • Documentation only helps when it’s kept current and actually used day to day.
  • Training that includes adults with mild to moderate learning disabilities as contributors makes a real difference.
  • Organisations need to treat communication as a human right, backed by leadership and ongoing support.

The findings have already shaped a new workforce development programme for social care staff, now heading into real-world testing. The team has also produced a set of short animations illustrating each element of good communication support, a useful resource for training sessions. View the animations.

Read the original blog: What does good communication look like for adults with learning disabilities living in social care?

More on the project: Improving Communication with Adults with Learning Disabilities

Tackling Health Inequalities & Protecting RNLDs

People with learning disabilities face severe, systemic health inequalities—yet specialist Learning Disability Nurse (RNLD) posts are disappearing across the health and care sector.

In this recorded session, Ben Thomas breaks down the findings from the Royal College of Nursing (RCN) workforce review. The session examines the critical role RNLDs play in driving equitable care, why training numbers are dropping, and the urgent national calls to action required to protect the workforce.

Key takeaways from the video:

  • The current scale of health disparities affecting people with learning disabilities.

  • Why specialist RNLD roles are irreplaceable in health and social care.

  • Practical recommendations from the RCN to support and retain workforce capacity.

Putting Inclusive Communication into Practice

Effective care and support starts with communication—yet inaccessible environments continue to isolate people with learning disabilities across health, social care, and society.

Hosted by the Kent, Surrey & Sussex Learning Disability Community of Practice, this webinar features Alix Lewer (CEO of Include.org) sharing practical strategies, lived-experience insights, and real-world tools to embed inclusive communication into everyday practice.

This recording includes British Sign Language (BSL) communication support.

Key takeaways from the video:

  • Core principles of inclusive communication and why adjustments matter.

  • Practical tools to adapt your practice in care settings.

  • Real-world examples of breaking down barriers for people with communication needs.

New ‘Beyond Words’ Book Club in Herne Bay!!

A new ‘Beyond Words’ Book Club is available, meeting on Friday 25 September. This is a wonderful opportunity for people to come together, and focus on social stories with the use of pictures – for people with learning disabilities and others.
The meeting is 1.30-2.30pm, at The Rossetti Room, Beach House, Beach Street, Herne Bay, CT6 5PT.
To join or to find out more please contact Sue at suec.carmichael@gmail.com or call on 07703770919 ‘Beyond Words’ Book Club | Beach Creative

NHS England Wants to Hear From Learning Disability and Neurodivergent Clinicians on All Age Continuing Care

NHS England is reshaping All Age Continuing Care (AACC), the umbrella term covering both NHS Continuing Healthcare for adults and Children and Young People’s Continuing Care. A recent meeting on this work flagged a gap: learning disability and neurodivergent clinicians are underrepresented in the conversation. 

Beacon CHC is hosting a survey on NHS England’s behalf, open to commissioners, providers, people with lived experience, their carers, and anyone else with a stake in AACC. It explores the challenges people currently face within the system and asks for views on how care might be described, commissioned, and funded more consistently in future. Part of the engagement looks at whether “currencies,” a way of grouping people with similar care needs into clinically meaningful categories, could help make care more comparable across systems. NHS England has confirmed this work will not change who is eligible for NHS Continuing Healthcare or impose a single national model regardless of local need.

The survey takes around 30 minutes in total, including 15 minutes to read the background information first. It closes on 18 September.

https://www.beaconchc.co.uk/we-want-to-hear-your-views-on-the-future-of-all-age-continuing-care

If you work with, support, or represent people with learning disabilities or who are neurodivergent, please take the time to respond, and share it within your own teams and networks. Feedback gathered through this engagement will feed into a public consultation later this year.