End of Life Care for people with learning disabilities

Thanks to Sue Marsden, Phoebe Mooney and the small group facilitators for coordinating the Community online learning event on 1st December 2021.

With 140 registered and 70 people attending, this was the Community’s largest event so far, while the richness of the presentations, films and group work will enable the Kent Surrey Sussex region to consider how to prioritise it ambitions for end of life care for people with learning disabilities.

Below are is a recording of Phoebe Mooney’s presentation on advanced care planning, along with the films shown at the event, and finally the one word evaluation. 

Setting Shared Priorities: Adult Social Care Research and Practice in Kent event

Research in social care is very important as it can inform social work practice and improve outcomes for people.  The Kent Research Partnership is one of six capacity building, social care partnerships funded by the NIHR Health Services and Delivery (HS&DR) programme in England. Our four-year programme of work will develop sustainable Kent-based partnerships to support the delivery of high quality social care research on the topics that matter most in our region. 

Kent County Council Adult Social Care, the University of Kent and partners are leading a project that aims to help build capacity and develop a positive culture of research.

Objectives of the Event:

  • Networking event to bring together our partners, including people supported by adult social care, carers, and the health and social care workforce
  • Review and discuss priority areas on which to focus adult social care research, with a view to improving outcomes for the people we support and our workforce.
  • Opportunity to think about and discuss how communities of practice can be formed to support best practice and practice-oriented research in adult social care.

Who should attend:

  • Social care practitioners and managers
  • People who use social care
  • Family/friends who are carers for someone
  • Commissioners and providers of care
  • Researchers with an interest in social care

To book your place please click on the flyer below. 

End of Life Care and People with Learning Disabilities in the Kent Surrey and Sussex

On 1st December the Community will be running its fifth online learning event, led by Sue Marsden, on End of Life Care for people with learning disabilities. 

Having worked with St Wilfrid’s Hospice, Eastbourne supporting people with learning disabilities and those around them with death and dying, Sue has significant learning to bring to this event, showcasing others who are undertaking best practice and sharing resources to help us focus on the challenges of providing care that is both person centred and adjusted.  

This will be an opportunity for the Community to work together to identify a set of standards for our region and establish opportunities for developments in practice.

Please click below on the picture below to book your place

Marvellous! A conversation with Neil Baldwin.

Welcome to the world of Neil Baldwin, who doesn’t recognise the labels that other people put on him. Neil’s autobiography, ‘Marvellous’ was made into a film starring Toby Jones. 

Neil has been a clown, a kit man for Stoke City FC, freeman of the city of Stoke-on-Trent and, due to his voluntary work at Keele University, has an honorary degree.

The Health Creation Academic Network will be chatting with Neil and his friend Malcolm Clarke about his life and what he can teach us about how to educate students about enabling people to live life to the full; helping them to defy the expectations placed upon them by others. How can we focus on and promote abilities, skills and strengths?

To book your free place please click here 


University of Manchester Access to Hearing Services Research

Researchers at The University of Manchester are working with Health Education England (South-East region) to look at the challenges that people with a learning disability face when they access Hearing Services (Audiology).

They want to speak to people with a learning disability who have used these services (e.g., for a hearing test or to get a hearing aid) or tried to use these services. They also want to speak to family members and/or carers if you have been involved in accessing hearing services for a person with a learning disability. 

For more information please phone 07917605544 or email

Hearing research flyer
Hearing research Easy read