End of Life Care and People with Learning Disabilities in the Kent Surrey and Sussex

On 1st December the Community will be running its fifth online learning event, led by Sue Marsden, on End of Life Care for people with learning disabilities. 

Having worked with St Wilfrid’s Hospice, Eastbourne supporting people with learning disabilities and those around them with death and dying, Sue has significant learning to bring to this event, showcasing others who are undertaking best practice and sharing resources to help us focus on the challenges of providing care that is both person centred and adjusted.  

This will be an opportunity for the Community to work together to identify a set of standards for our region and establish opportunities for developments in practice.

Please click below on the picture below to book your place

Marvellous! A conversation with Neil Baldwin.

Welcome to the world of Neil Baldwin, who doesn’t recognise the labels that other people put on him. Neil’s autobiography, ‘Marvellous’ was made into a film starring Toby Jones. 

Neil has been a clown, a kit man for Stoke City FC, freeman of the city of Stoke-on-Trent and, due to his voluntary work at Keele University, has an honorary degree.

The Health Creation Academic Network will be chatting with Neil and his friend Malcolm Clarke about his life and what he can teach us about how to educate students about enabling people to live life to the full; helping them to defy the expectations placed upon them by others. How can we focus on and promote abilities, skills and strengths?

To book your free place please click here 


University of Manchester Access to Hearing Services Research

Researchers at The University of Manchester are working with Health Education England (South-East region) to look at the challenges that people with a learning disability face when they access Hearing Services (Audiology).

They want to speak to people with a learning disability who have used these services (e.g., for a hearing test or to get a hearing aid) or tried to use these services. They also want to speak to family members and/or carers if you have been involved in accessing hearing services for a person with a learning disability. 

For more information please phone 07917605544 or email

Hearing research flyer
Hearing research Easy read


KSS Hearing and Audiology Research Project needs your help.

In August Marianne Day, Shanice Thomas and Siobhan Brennan from University of Manchester presented their practice and research knowledge on the issues of hearing and audiology in people with learning disabilities and autistic people at a Community online event – please see the film below:-

The team are now looking for people with learning disabilities and autistic people in Kent Surrey and Sussex to participate in their research study to expose the barriers to access to good hearing for these communities, and outline some recommendations for adjustments to practice to improve this situation.

If you know of anyone that might like to contribute please contact Marianne via email Marianne.day@manchester.ac.uk.



Research Fellow opportunity

Virtual Consultations in Primary/Community Care Project

We are excited to advertise for a Research Fellow (part-time) to undertake a project exploring experiences and views of people with learning disabilities, and their families of accessing and interacting with health/community care professionals using virtual consultations (phone, video and email).

This project is funded by the Applied Research Collaboration in Kent Surrey Sussex and is funded for 16 months.

We welcome applications from individuals who have previous qualitative research experience and have experience with working with people with Learning Disabilities, families and health/community professional groups.

For more details please see http://jobs.surrey.ac.uk/039821