Do you work with people with a learning disability? Or do you have an intellectual disability yourself? Are you interested in end of life care?
If so, you might like to share your views of a toolkit we are developing to help young people make care plans for when they are not able to express their view and when they have a life limiting condition. People with learning disabilities and their families may need help to think through questions about end of life. They may also find it more difficult to talk with care-givers about their wishes for future care.
The University of Surrey is working with Health Education England in Kent, Surrey and Sussex to develop a toolkit to help care-givers make advance care plans with children and young people with learning disabilities and their families.
To make sure the learning materials are as good as possible, we need the views of young people with learning disabilities and the people who work with them to take part in a workshop at the University of Surrey, to have your voices heard and make a real difference in this very important but often neglected area.
The workshop will be held at the University of Surrey on Tuesday 11th July from 1 to 4pm. We can pay travel expenses and will provide lunch.
If you are interested to attend, please email Matthew Peacock – firstname.lastname@example.org – to book a place. We look forward to working with you.
Very best wishes, Ann Gallagher, Professor of Ethics and Care