In August Marianne Day, Shanice Thomas and Siobhan Brennan from University of Manchester presented their practice and research knowledge on the issues of hearing and audiology in people with learning disabilities and autistic people at a Community online event – please see the film below:-
The team are now looking for people with learning disabilities and autistic people in Kent Surrey and Sussex to participate in their research study to expose the barriers to access to good hearing for these communities, and outline some recommendations for adjustments to practice to improve this situation.
If you know of anyone that might like to contribute please contact Marianne via email Marianne.email@example.com.
April sees the first of three online Community events which are all linked our shared purpose for people with learning disabilities and their allies to live Healthy Safe and Fulfilled lives.
This first event will be on 28th April from 12:30 until 2pm with Lisa Hopkins, Scott Watkin and Emily Stewart from Seeability. They will be sharing their model for investing in and mentoring people with learning disabilities to be leaders in their organisation and communities.
Further online Community events are scheduled:-
- 26th May – A Person Centred Workforce Workshop with Carrie Jackson
- 23rd June – Lifeswap -an interactive model for challenging stereotypes and reducing stigma- Ronnie Treston & Becky Leonard‑Dixon
More details to be announced.
The Royal College of Nursing has recently published some easy read information on pain and pain control.
People with learning disabilities have been engaged in the development of the information through the Clear Communication People.
Click on the picture above to take you to the page where the easy read information is available.
The new Learning Disabilities Mortality Review (LeDeR) Programme that has been commissioned by the Healthcare Quality Improvement Partnership (HQIP) on behalf of NHS England.
The aim of the Programme is to make improvements in the quality of health and social care service delivery for people with learning disabilities and to help reduce premature mortality and health inequalities faced by people with learning disabilities, through national and local reviews of deaths.
The Programme has now started, and we would appreciate your views about a number of aspects of the work.
We have set up a consultation that runs from now until 10th August to find out your views about:
• The core data to be collected at the notification of a death, at an initial ‘light touch’ local review, and in a full multidisciplinary review of the death of a person with learning disabilities (LD).
• The criteria for which deaths are would require an initial ‘light touch’ local review only, and which will require full multiagency review.
• The definition of key terms used in the Programme.
• The standards against which ‘best practice’ will be measured.
The link to the online consultation is at:
We would be grateful if you could please contribute to the consultation by following the link and completing as much or as little of the consultation as you are able to. Please feel free to send on to others you know who may be interested in participating. Thank you.
If you have any queries about the consultation, or would prefer a paper version of the consultation questions, please contact Pauline.Heslop@bristol.ac.uk and we will send this to you.
A comprehensive report by the Kent, Surrey and Sussex Intellectual Disabilities workforce has recently been published on behalf of NHS Health Education Kent Surrey and Sussex.
The reason for this report is:
There are an estimated 1017 qualified nurses working in the Intellectual Disability services in this demographic area. However, data reviewed suggests that 64% of these nurses are working in the private and independent services. It is estimated that over the next decade upwards of 42% of these nurses could retire. Therefore, the education commissions for intellectual disability nurses are not meeting the supply needs of employers and it is quite difficult to recruit to.
If you would like to read further please do access the attached documents which are also downloaded in an easy read format.