New Evidence: What Makes Communication Support Work for Adults with Learning Disabilities?

Good communication underpins choice, relationships and wellbeing, yet the evidence for what actually works in long-term care has been thin. A new King’s College London blog by research assistant Emily Urwin sets out early findings from the Improving Communication with Adults with Learning Disabilities (ICALD) programme, and it’s worth ten minutes of your time.

The team ran a realist review of the evidence, checked against the experience of people with learning disabilities, carers and professionals, then built on it through workshops, focus groups and interviews to map a Theory of Change for improving practice.

 

Key takeaways:

  • Communication works best when staff hold genuine regard for a person’s ability to communicate and take time to know them beyond task-focused care.
  • It should support enjoyment and shared experience, not just meeting wants and needs.
  • Documentation only helps when it’s kept current and actually used day to day.
  • Training that includes adults with mild to moderate learning disabilities as contributors makes a real difference.
  • Organisations need to treat communication as a human right, backed by leadership and ongoing support.

The findings have already shaped a new workforce development programme for social care staff, now heading into real-world testing. The team has also produced a set of short animations illustrating each element of good communication support, a useful resource for training sessions. View the animations.

Read the original blog: What does good communication look like for adults with learning disabilities living in social care?

More on the project: Improving Communication with Adults with Learning Disabilities

What Matters to Me Online Launch Event

Following the Challenging Behaviour Foundation’s presentations at the 2024 Community Conference we are pleased to share this opportunity to hear their key findings from their What Matters to Me Project.

 

This initiative involved engaging with young people with severe or profound and multiple learning disabilities to influence policy and shape support and services.

The event will be an interactive session, sharing the project multi-media manifesto including a practical toolkit, giving attendees a chance to reflect on their own organisations practice, hearing from those involved in What Matters to Me and bringing together other good practice examples.

Places are limited, so book your free ticket here:

What Matters to Me Online Launch Tickets, Thu, Mar 27, 2025 at 9:30 AM | Eventbrite’

Reducing self injury through education in KSS *content warning*

The community is pleased to be able to share some published work by regular contributors and Surrey-based Learning Disability Nurse Carla Withers. 

The paper tells the story of a man with a history of self-injury during masturbation, and how the Community team for people with learning disabilities undertook assessments and education sessions to support him to masturbate safely. 

If you want to read more the paper is published in the Nursing Times and can be found by clicking on the link below.

 Safe masturbation: educating a man with learning disabilities | Nursing Times 

Community Conference 2024 – booking details

The Community of Practice conference will take place on 4th December at Chatham Maritime hosted by Canterbury Christ Church University. 

This conference maintains it’s commitment to inclusion and working together with the focus being people with learning disabilities and their allies living Healthy, Safe and Fulfilled lives.

Keynotes have been confirmed from Bemix and their Be a Leader programme, and Ciara Lawrence – Podcaster and influencer – and her Pink Sparkle Podcast and will reflect the two areas of work from last years conference, relating to co-production and Learning Disability Nursing in the South East. 

Details for booking your free place can be found by clicking here.

If you would like to share your work demonstrating people with learning disabilities living healthy safe and fulfilled lives, please complete the short form available by clicking here. 

Books Beyond Words – ‘Loving Babies’ Book Launch

Kent Surrey Sussex Learning Disability Community of Practice event will be hosting the new Beyond Words book launch at the event at Kingston University on 1st December.

Beyond Words is delighted to be launching the second word-free picture book in their series on maternity and parenting. Loving Babies is the much-anticipated follow-up book to last year’s Having a Baby. Expertly co-created and trialled by professionals and experts by experience, Loving Babies is a picture story showing the realities and triumphs of early years’ parenting.

The book is designed to be used by people with learning disabilities or who find pictures easier to understand than words. It depicts two different households caring for and loving their new children. Loving Babies and Having a Baby can be used together to open conversations about pregnancy, parenting, and having children.

At the event, Baroness Hollins will be presenting this new publication and in their will be a lunch time book club to explore this new publication. 

Loving Babies Book Beyond words cover