Care Act appeal over care package cut dismissed
Luke Davey, 41, had appealed Justice Morris’ ruling that there was “no relevant legal error” in Oxfordshire council’s decision to cut his weekly personal budget by 42%, but has lost the appeal.
Read the article here.
08.50 – 09.15 How well does the education system in England work for children on the autism spectrum?
Tim Nicholls, The National Autistic Society
10.00 – 10.10 Round up
10.10 – 10.15 Feedback
10.15 Close and proceed to the TES SEN* show
*Please note the TES SEN Show is a free ticketed event which is not organised by the National Autistic Society. If you wish to attend this event, you must have a ticket.
UN Office of the High Commissioner for Human Rights, 2017
A report from the United Nations Committee on the Rights of People with Disabilities.
Available via Care Knowledge here.
Tuesday 19 September 2017 – Dr Stuart Todd “And then they were dead! How? The last months of life of people with learning disabilities”
A research based understanding of what it means to have a learning disability is becoming more complete as death and dying have been incorporated into the research agenda. Borrowing on the central notion of ‘transitioning’, this seminar will focus on the fateful transition in the levels of people with learning disabilities. It will offer a historical context based on a study of death and dying in a Victorian asylum through which to appreciate the challenges of death and dying for modern learning disability service providers. Data will then be presented from two recent UK based studies that focused on looking at the ways specialist and generic care services have responded to people with LD in the last months of their lives. Key issues here are the distinct mortality profiles of people with LD and Downs Syndrome; low levels of expected deaths within this population; the end of life care outcomes for people with LD; the fragility of community based dying and the nature of later life care transitions. the seminar will also briefly sketch out themes for future collaborative research.
Dr Stuart Todd is a Senior Lecturer in Learning Disability Nursing at the University of South Wales. His research interests have focused on three key themes: the self-identities of people with learning disabilities, the lives and experiences of parents of people with learning disabilities over the life course; and the social and historical relationship between disability and death.
Please contact Jo Ruffels to confirm a FREE place
e: J.Ruffels@kent.ac.uk | Tel: +44 (0) 1227 827955 |
This briefing by Jim Kennedy highlights the practice messages and resources available in NHS England’s recently published and very useful guide on providing end of life care to people with a learning disability. Although prepared by an English organisation its messages and resources are of UK-wide interest.
This is an important care concern which merits greater focus, and NHS England’s guide offers straightforward and accessible pointers of relevance to both commissioners and practitioners.
The guide is built around a framework of six ambitions (or principles) that lead to a series of top tips, followed by brief suggestions as to how these can be put into practice, and links to relevant resources.
Read the briefing here.