Thanks to Rosie Bell from East Kent Mencap for sharing this.
Great Ormond Street Hospital for Children (GOSH) are looking to recruit a full-time Research Fellow and Associate to work on an National Institute for Health Research (NIHR) funded project focussed on the organisation and delivery of hospital care and services to children and young people with and without learning disability.
This posts are available for a 36-month period for 5 days a week from 01.12.15. You will be based within the Centre for Outcomes and Experience Research in Children’s Health Illness and Disability (ORCHID), a dedicated multidisciplinary research unit in GOSH. The focus of our research is on the impact of health, illness and disability for children and young people and their families, with a particular emphasis on the translational benefits and implementation in clinical practice.
The postholder will work on an NIHR Health Services and Delivery Grant. This is a national mixed methods study aimed at identifying the barriers and facilitators to ensuring equal access to high quality hospital care and services for children and young people with learning disability and their families.
You will also be involved with other stages of the research project, including undertaking a literature review, updating the project website, data analysis, facilitating stakeholder workshops and writing up the findings for dissemination.
For more details of the positions, check the links below:-
- Research Associate at Band 7 https://www.jobs.nhs.uk/xi/vacancy/a8c1e5466e45756b58bab8064510e6fb/?vac_ref=913853489
- Research Fellow at Band 8A https://www.jobs.nhs.uk/xi/vacancy/6b2368e60b470e84ceb639858c86eb39/?vac_ref=913851930
The aim of the Programme is to make improvements in the quality of health and social care service delivery for people with learning disabilities and to help reduce premature mortality and health inequalities faced by people with learning disabilities, through national and local reviews of deaths.
The Programme has now started, and we would appreciate your views about a number of aspects of the work.
We have set up a consultation that runs from now until 10th August to find out your views about:
• The core data to be collected at the notification of a death, at an initial ‘light touch’ local review, and in a full multidisciplinary review of the death of a person with learning disabilities (LD).
• The criteria for which deaths are would require an initial ‘light touch’ local review only, and which will require full multiagency review.
• The definition of key terms used in the Programme.
• The standards against which ‘best practice’ will be measured.
The link to the online consultation is at:
We would be grateful if you could please contribute to the consultation by following the link and completing as much or as little of the consultation as you are able to. Please feel free to send on to others you know who may be interested in participating. Thank you.
If you have any queries about the consultation, or would prefer a paper version of the consultation questions, please contact Pauline.Heslop@bristol.ac.uk and we will send this to you.
After an extended period of consultation reflection and some changes, we are pleased to share the final versions of the Purpose of this Community of Practice.
To download these please click on the picture below.
The first four actions identified as priorities by the group that met in May 2013 are:-
1) Help people with learning disabilities to know what to expect
2) Raise awareness with front line staff
3) Think about how we will know the Community is working well
4) Influencing people, organisations and governments.
So far we are pleased to have 91 people or organisations following this blog, many of whom are supporting and caring for people on a daily basis. We are also pleased to have been sharing opportunities for people with learning disabilities and frontline staff to get involved with.
We have been approached by care staff and family carers to help them identify how to know what to expect, and what is expected of them when they are admitted to hospital. We are going to be looking for people to help with a project like this. Do you know anyone that might want to help?
Please let us know by leaving a comment below or sending me an email to firstname.lastname@example.org.
To do this Kate is looking to interview care managers and home managers of people with learning disabilities where a Deprivation of Liberties has been applied.
If you are able to contribute please contact Kate directly by email at email@example.com