Let’s Talk about Health Research event 9th September

An open invitation from Amanda Bates, Public Engagement Officer ‘‘Are you interested in health and health services? Would you like to know more about research in health and social care?

Then why not come to our ‘Let’s talk about Health Research!’ event, hosted by the Centre for Health Services Studies (CHSS).

chssletstalk flyer

Just pop into the Westgate Hall, Canterbury on Wednesday 9th September anytime between 11.30am and 2.00pm to meet health researchers, enjoy talks, activities and films, and to find out if you would like to be involved in the research that we do at CHSS. It will be an informal opportunity to talk with others who are interested in health research and to learn about what’s happening on your doorstep’’.

To register your interest, or if you have any questions, e-mail engage-chss@kent.ac.uk or phone 01227 823940. For those that like to Tweet, please follow @chss_kent and search for hashtag #chssletstalk

Learning Disability Mortality Review Consultation

The new Learning Disabilities Mortality Review (LeDeR) Programme that has been commissioned by the Healthcare Quality Improvement Partnership (HQIP) on behalf of NHS England.

The aim of the Programme is to make improvements in the quality of health and social care service delivery for people with learning disabilities and to help reduce premature mortality and health inequalities faced by people with learning disabilities, through national and local reviews of deaths.

The Programme has now started, and we would appreciate your views about a number of aspects of the work.

We have set up a consultation that runs from now until 10th August to find out your views about:

•             The core data to be collected at the notification of a death, at an initial ‘light touch’ local review, and in a full multidisciplinary review of the death of a person with learning disabilities (LD).

•             The criteria for which deaths are would require an initial ‘light touch’ local review only, and which will require full multiagency review.

•             The definition of key terms used in the Programme.

•             The standards against which ‘best practice’ will be measured.

The link to the online consultation is at:

https://sps.onlinesurveys.ac.uk/learning-disabilities-mortality-review-programme-stakehol-2

We would be grateful if you could please contribute to the consultation by following the link and completing as much or as little of the consultation as you are able to. Please feel free to send on to others you know who may be interested in participating. Thank you.

 If you have any queries about the consultation, or would prefer a paper version of the consultation questions, please contact Pauline.Heslop@bristol.ac.uk and we will send this to you.

Anna Marriott

IHAL 

Reasonable Adjustments Conference Report & Presentations – 17th June 2015

This year’s Conference was based on how we can all implement reasonable adjustments for people with learning disabilities in our work. The conference participants and the Community of Practice team found each of the presentations insightful, interesting and thought provoking. The audience participation and inclusion generated great debate and key questions for reflective thought.  Main focus with regards to barriers to ensuring services and people are well adjusted to meet the needs of these individuals.  There were lots of opportunities for networking which allowed all to address some key questions and barriers to ensure services and people are well adjusted to meet the needs of these individuals.   Delegates shared personal insights and experiences, while remembering that people with learning disabilities are no less human than anyone else.

All the presentations and and resources from the day are available on the conference page. Please click here

Professor Chris Hatton from The University of Lancaster was guest speaker and he opened the event with the provocative question – “are you well adjusted? “

The event was a great success in showcasing some of the excellent work and initiatives happening across Kent for people with learning disabilities particularly around access to health care and therapies.

Feedback received from the attendees from the day was very positive.   We would like to thank you all for your responses; which are invaluable to making next years Conference even more of a success.

Individuals who could not make the conference were able get involved via twitter using the #LDWeek15 and #ldcop15 hashtags. A full transcript of this conversation including photos are available by clicking here.

The day was held during Learning Disability Awareness Week “inclusion” and all participants wanted to mark this by having their support shared via the below photo being shared on Twitter.

#ldweek15 picture

For further details on the whole day click on the conference page by clicking here.

Tracey Rose

Community Learning Disability Nurse

Twitter @traceypockett 

 

Kent and Medway Learning Disability Community of Practice Purpose

After an extended period of consultation reflection and some changes, we are pleased to share the final versions of the Purpose of this Community of Practice.

To download these please click on the picture below.

CoP Easy Read purposeCoP Purpose

 

 

 

 

 

 

 

The first four actions identified as priorities by the group that met in May 2013 are:-

1) Help people with learning disabilities to know what to expect
2) Raise awareness with front line staff
3) Think about how we will know the Community is working well
4) Influencing people, organisations and governments.

So far we are pleased to have 91 people or organisations following this blog, many of whom are supporting and caring for people on a daily basis. We are also pleased to have been sharing opportunities for people with learning disabilities and frontline staff to get involved with.

We have been approached by care staff and family carers to help them identify how to know what to expect, and what is expected of them when they are admitted to hospital. We are going to be looking for people to help with a project like this. Do you know anyone that might want to help?

Please let us know by leaving a comment below or sending me an email to daniel.marsden@nhs.net.