New Evidence: What Makes Communication Support Work for Adults with Learning Disabilities?

Good communication underpins choice, relationships and wellbeing, yet the evidence for what actually works in long-term care has been thin. A new King’s College London blog by research assistant Emily Urwin sets out early findings from the Improving Communication with Adults with Learning Disabilities (ICALD) programme, and it’s worth ten minutes of your time.

The team ran a realist review of the evidence, checked against the experience of people with learning disabilities, carers and professionals, then built on it through workshops, focus groups and interviews to map a Theory of Change for improving practice.

 

Key takeaways:

  • Communication works best when staff hold genuine regard for a person’s ability to communicate and take time to know them beyond task-focused care.
  • It should support enjoyment and shared experience, not just meeting wants and needs.
  • Documentation only helps when it’s kept current and actually used day to day.
  • Training that includes adults with mild to moderate learning disabilities as contributors makes a real difference.
  • Organisations need to treat communication as a human right, backed by leadership and ongoing support.

The findings have already shaped a new workforce development programme for social care staff, now heading into real-world testing. The team has also produced a set of short animations illustrating each element of good communication support, a useful resource for training sessions. View the animations.

Read the original blog: What does good communication look like for adults with learning disabilities living in social care?

More on the project: Improving Communication with Adults with Learning Disabilities

Reducing self injury through education in KSS *content warning*

The community is pleased to be able to share some published work by regular contributors and Surrey-based Learning Disability Nurse Carla Withers. 

The paper tells the story of a man with a history of self-injury during masturbation, and how the Community team for people with learning disabilities undertook assessments and education sessions to support him to masturbate safely. 

If you want to read more the paper is published in the Nursing Times and can be found by clicking on the link below.

 Safe masturbation: educating a man with learning disabilities | Nursing Times 

Seeking Learning Disability Nurses for Medicines optimisation research

Danielle Adams – Pharmacist and PhD Student at the University of Warwick is undertaking a Delphi study in deprescribing psychotropic medications in people with learning disabilities and is keen to recruit some learning disabilities nurses with an interest in the subject to participate. 

This will involve completing a questionnaire – taking approximately 20 minutes and helping to prioritise the themes until a consensus is found. It is envisaged that this activity will be complete by the end of November 2024. 

For more details please contact Danielle via danielle.adams@warwick.ac.uk 

Community Conference 2024 – booking details

The Community of Practice conference will take place on 4th December at Chatham Maritime hosted by Canterbury Christ Church University. 

This conference maintains it’s commitment to inclusion and working together with the focus being people with learning disabilities and their allies living Healthy, Safe and Fulfilled lives.

Keynotes have been confirmed from Bemix and their Be a Leader programme, and Ciara Lawrence – Podcaster and influencer – and her Pink Sparkle Podcast and will reflect the two areas of work from last years conference, relating to co-production and Learning Disability Nursing in the South East. 

Details for booking your free place can be found by clicking here.

If you would like to share your work demonstrating people with learning disabilities living healthy safe and fulfilled lives, please complete the short form available by clicking here. 

Kent and Medway Learning Disability and Autism workforce events

Canterbury Christ Church University will be hosting a series of learning disability and autism workforce events in 2024, aimed at:-

  • Care staff and professionals working directly with people with learning disabilities and/autistic people, from education, health and care services.
  • Education, Care and Health managers.
  • Police and community support workers
  • Anyone in Kent and Medway working with this diverse population

The first event will feature a presentation from CCCU MSc student and Makaton Trainer Katie Potts and her practice based research investigating how can Makaton be embedded into schools and their wider community.

To book a free place on this first event, please click here