Timms Review of Personal Independence Payments (PIP)

Update from the co-chairs of the Timms Review outlining the next stages of the review and opportunities for disabled people, organisations and others to take part. The ‘Call for Evidence’ is open to responses until midnight on 28 May, and is available in a number of accessible formats. Please check out – Timms Review of Personal Independence Payment: call for evidence – GOV.UK if this is important to you, a family member or someone you support.

Kent & Medway Learning Disability and Autism Community of Practice (Pilot)

A Pilot Community of Practice is being arranged by Ruth Germaine (Knowledge Mobilisation Fellow). This is being set up for anyone across Kent and Medway who directly support or run services for people with learning disabilities and/or autistic people. The Pilot Community of Practice will be co-led by a small group including experts by experience. 

The aims of the pilot:

  • Understand what matters to people with learning disabilities and autistic people
  • Learn together to build shared understanding and stronger relationships
  • Improve everyday practice by listening to voices that are often unheard or misunderstood.

Sessions are online, the first being Wednesday 6 May 12-1.30pm – please liaise with r.germaine@nhs.net for more information

(PS – This is not connected to the Kent, Surrey & Sussex Learning Disability Community of Practice)

KM LDA CoP flyer

Safeguarding is everyone’s responsibility!

Introducing this great new video created by Brighton & Hove Speak Out and Grace Eyre, on the importance of speaking up and keeping safe fom exploitation and abuse. Highlighting the different types of abuse experienced, people with learning disabilities talk about the importance of ensuring we all take responsibility to keep people safe. Please share!

#Safeguarding #Keeping Safe

Speaking Up and Keeping Safe – a safeguarding video

The Yellow Tulip Group: Researching with people

The Yellow Tulip Group is for anyone who is interested in doing research with people with a learning disability. It is run by Jonny Ding, Richard Keagan-Bull, Andrew Priest and Irene Tuffrey-Wijne who are all members of the Kingston University Intellectual Disability (KIND) research group

Our meetings are open to seasoned researchers, people just starting out, people with a learning disability, family members, carers, students, and practitioners. We’ve even had people join us from different parts of the world. If you’re curious about inclusive research, you’re welcome.

The group has been running for over four years now, and we meet on Zoom on the last Tuesday of every month from 12–1pm. The meetings are informal and friendly. There’s no pressure — you can come along to listen, share, ask questions, or just see what it’s all about.

Our topics are guided by what people in the group want to talk about. Over the past few years, we’ve explored things like:

  • Doing research together with people with a learning disability
  • Creative and fun research methods
  • Publishing research articles together
  • Ethics applications
  • Sharing ongoing projects and learning together

Sometimes we’ve had short presentations. Other times, it’s been more of an open discussion. What matters most is that it’s a collaborative space where people doing inclusive research can learn from each other.

There is so much brilliant research happening, but we don’t always get to hear about it. The Yellow Tulip Group is a space to share ideas, challenges, successes, and good practice. It’s about supporting each other to do research together, not just research on people.

“Keith and I just want to thank you, Irene , Richard and Sarah for the brilliant meeting today! We’d really like Sarah to know how much we enjoyed her presentation and how it inspired Keith in taking forward his own family research… Keith felt that Sarah’s films made history much more accessible for him.” If you’d like to join us, you can email Jonny.Ding@kingston.ac.uk to sign up. We’d love to see you!

Let’s Talk About Co-Creation; Your Experience Matters

Ruth Germaine, Independent Health & Care Consultant is seeking the views of people with learning disabilities, autistic people, their family, friends and carers – focused on co-creation. Ruth is organising Workshops, one in person (Chatham Maritime, Kent) and one online. Please see attached flyers for more details of these events on 17 and 19 March. For more information please contact Ruth at ruth.germaine@reflectiveruthconsultancy.com