You can now comment on this draft scope. The scope defines what the guideline will (and will not) cover.
The consultation closes on Tuesday 5 February 2019 at 5pm
BBC: Why won’t anyone rent to our daughter?
iDirect has helped people with learning disabilities to get access to private rented market
Guardian: Austerity is denying patients and care service users a voice
Decades of progress on public participation are being lost as grassroots organisations face financial problems and closures.
Whistleblower nurse who lifted lid on autism abuse scandal reveals how she felt powerless for 12 years – until she saw one victim being violently restrained by NHS staff (Warning distressing story)
A mental health nurse has revealed she saw staff in a secure psychiatric unit restrain a patient with learning disabilities so violently that they broke his neck – then left him lying in his own waste over a weekend.
The man was only taken to hospital two days later, after doctors intervened, and was found to be paralysed.
Warning- this is a distressing story, but you can read about it here
Down’s Syndrome and Epilepsy
Prevalence of seizures in people with Down’s syndrome is higher than the general population.
There are two peaks of incidence – during the first two years of life and between 20 and 30 years. However, some people develop them later in life.
As people with Down’s syndrome become older their chances of getting epilepsy increases. About 46% of people (nearly one in two) with Down’s syndrome who are older than the age of 50 have a diagnosis of epilepsy.
Individuals with Down’s syndrome who develop Alzheimer’s dementia have epilepsy much more often than individuals who don’t have Alzheimer’s dementia.
Seizures are generally very obvious, however, sometimes it can be diff icult to know if someone is having a seizure.
