During this year’s Community of Practice Conference Molly Barratt from Show Me the Access Blog joined the Twitter conversation making some useful and necessary contributions.
She kindly forwarded some details of her blog over to us and we find it a good read and campaign.
To find out more click on the logo below.
You’ll find opportunities to join the conversation on Twitter and Facebook
Aspire is a Kent based team who are campaigning to create a free school to transform the life opportunities for children and young people with Autistic Spectrum Conditions. There mission is to give children and young people the support they need to learn, thrive and succeed in life as independent adults in modern Britain.
To support the Aspire project you can:-
a) click on the picture below to find out more about the project
b) Check their website by clicking here and
c) Sign the petition to the Secretary of State for Education Nicky Morgan, by clicking here.
The Royal College of Nursing has recently published some easy read information on pain and pain control.
People with learning disabilities have been engaged in the development of the information through the Clear Communication People.
Click on the picture above to take you to the page where the easy read information is available.
The new Learning Disabilities Mortality Review (LeDeR) Programme that has been commissioned by the Healthcare Quality Improvement Partnership (HQIP) on behalf of NHS England.
The aim of the Programme is to make improvements in the quality of health and social care service delivery for people with learning disabilities and to help reduce premature mortality and health inequalities faced by people with learning disabilities, through national and local reviews of deaths.
The Programme has now started, and we would appreciate your views about a number of aspects of the work.
We have set up a consultation that runs from now until 10th August to find out your views about:
• The core data to be collected at the notification of a death, at an initial ‘light touch’ local review, and in a full multidisciplinary review of the death of a person with learning disabilities (LD).
• The criteria for which deaths are would require an initial ‘light touch’ local review only, and which will require full multiagency review.
• The definition of key terms used in the Programme.
• The standards against which ‘best practice’ will be measured.
The link to the online consultation is at:
https://sps.onlinesurveys.ac.uk/learning-disabilities-mortality-review-programme-stakehol-2
We would be grateful if you could please contribute to the consultation by following the link and completing as much or as little of the consultation as you are able to. Please feel free to send on to others you know who may be interested in participating. Thank you.
If you have any queries about the consultation, or would prefer a paper version of the consultation questions, please contact Pauline.Heslop@bristol.ac.uk and we will send this to you.
Anna Marriott
The Kent Parents Action Group are now starting monthly meetings! Please see links for details.
Shepway Parent Support Group Flyer Kent Parent Support Groups Flyer