Report on family perspectives on use of medication

The Challenging Behaviour Foundation was recently asked by NHS England to run a consultation providing a voice for family carers to share their lived experience when medication is suggested or prescribed for their relative, as well as to identify what information and support family carers currently have access to when medication is suggested or prescribed for their relative.

The result of that work is this report “Stopping the Over Medication of People with Learning Disability, Autism or Both: A Family Carer Perspective”

Download here >

June 12-18 is Cervical Screening Awareness Week

Recent data collected from over half of GP practices in England in 2014-15 and 2015-16, to identify potential differences in the treatment, health status, and outcomes of people with learning disabilities compared with the rest of the population, found that fewer than 1 in 3 eligible females with a learning disability received cervical cancer screening, showing no change from 2014-15. Over 3 in 4 eligible females without a learning disability received this test.

See this NHS Digital Report: http://bit.ly/2rPVyYd

#KSSCOP17 – how shall we build our community?

ER Questions to help us involve you

 

During our KSSCOP conference on 15 June we will be having a conversation about how we build our community. We’d like to know your ideas about the work we do in the future.

We’ve listed all the questions we’d like to talk about in this document, which you can download here: http://bit.ly/2qNf1Xd   This is the consultation document for everybody.

Read the questions and have a think about your answers or suggestions.

If you are coming to the Conference on 15 June bring these with you to tell us on the day.

If you’re not coming but would like to tell us your ideas and suggestions please give those to us by email, post or phone using the information in this document – but please, if you can, do this by 9 June so we can feed it into the discussion at the Conference.

Thanks!

Action for Kids: Transition to Adult Life and the Mental Capacity Act

 

Action for Kids are organising a parent/carer/professional seminar on June 29th with a range of expert speakers including lawyers and care experts. It is heavily subsidised for parents and carers, only £15 including lunch. Image above has details.

TRANSITION TO ADULT LIFE AND THE MENTAL CAPACITY ACT, including welfare deputyship and Deprivation of Liberty Safeguards (DOLS), also covering all the assessments from age 18 and innovative ways to organise further education and manage challenging behaviour.

The cost is only £15 including lunch for parents/carers and £45 for professionals and it takes place in central London. Please see the flyer below and go here: http://bit.ly/2rxV1MC to book.

Please let me know if you have any queries. Many thanks

Belinda Blank
Independent Advocate
Director, The Advocacy and Support Partnership