Learning Disability Mortality Review Consultation

The new Learning Disabilities Mortality Review (LeDeR) Programme that has been commissioned by the Healthcare Quality Improvement Partnership (HQIP) on behalf of NHS England.

The aim of the Programme is to make improvements in the quality of health and social care service delivery for people with learning disabilities and to help reduce premature mortality and health inequalities faced by people with learning disabilities, through national and local reviews of deaths.

The Programme has now started, and we would appreciate your views about a number of aspects of the work.

We have set up a consultation that runs from now until 10th August to find out your views about:

•             The core data to be collected at the notification of a death, at an initial ‘light touch’ local review, and in a full multidisciplinary review of the death of a person with learning disabilities (LD).

•             The criteria for which deaths are would require an initial ‘light touch’ local review only, and which will require full multiagency review.

•             The definition of key terms used in the Programme.

•             The standards against which ‘best practice’ will be measured.

The link to the online consultation is at:

https://sps.onlinesurveys.ac.uk/learning-disabilities-mortality-review-programme-stakehol-2

We would be grateful if you could please contribute to the consultation by following the link and completing as much or as little of the consultation as you are able to. Please feel free to send on to others you know who may be interested in participating. Thank you.

 If you have any queries about the consultation, or would prefer a paper version of the consultation questions, please contact Pauline.Heslop@bristol.ac.uk and we will send this to you.

Anna Marriott

IHAL 

Tizard Lecture – Dr Janet Carr 5th September 2015

As part of the University of Kent’s 50th anniversary celebrations, the Tizard Centre will be hosting a lecture followed by an informal reception on Saturday 5 September at 12 noon. This is being held in the new Templemen Library lecture theatre, University of Kent, Canterbury campus.

Dr Janet Carr, OBE. pioneering psychologist, will be giving a talk based on the findings of her 50 year research project of people with Down’s syndrome that became a lifelong commitment to changing attitudes. After half a century and at the age of 87, Janet Carr has just completed the world’s longest running research project in to people with Down’s syndrome. The longitudinal study began with 54 babies born in the year to November 1964 and living with their families in South-East England. Dr Carr’s aim was to establish the children’s educational needs using intelligence tests such as pattern-matching. The research, which began when the babies were six weeks old was initially intended to last just 10 months but the young researcher wanted to look longer term and explore family interactions.

The lecture is free and open to all and we do hope that you will be able to join us at this event. To book a place please email J.Ruffels@kent.ac.uk Tizard event 5-9-15

Reasonable Adjustments Conference Report & Presentations – 17th June 2015

This year’s Conference was based on how we can all implement reasonable adjustments for people with learning disabilities in our work. The conference participants and the Community of Practice team found each of the presentations insightful, interesting and thought provoking. The audience participation and inclusion generated great debate and key questions for reflective thought.  Main focus with regards to barriers to ensuring services and people are well adjusted to meet the needs of these individuals.  There were lots of opportunities for networking which allowed all to address some key questions and barriers to ensure services and people are well adjusted to meet the needs of these individuals.   Delegates shared personal insights and experiences, while remembering that people with learning disabilities are no less human than anyone else.

All the presentations and and resources from the day are available on the conference page. Please click here

Professor Chris Hatton from The University of Lancaster was guest speaker and he opened the event with the provocative question – “are you well adjusted? “

The event was a great success in showcasing some of the excellent work and initiatives happening across Kent for people with learning disabilities particularly around access to health care and therapies.

Feedback received from the attendees from the day was very positive.   We would like to thank you all for your responses; which are invaluable to making next years Conference even more of a success.

Individuals who could not make the conference were able get involved via twitter using the #LDWeek15 and #ldcop15 hashtags. A full transcript of this conversation including photos are available by clicking here.

The day was held during Learning Disability Awareness Week “inclusion” and all participants wanted to mark this by having their support shared via the below photo being shared on Twitter.

#ldweek15 picture

For further details on the whole day click on the conference page by clicking here.

Tracey Rose

Community Learning Disability Nurse

Twitter @traceypockett