Mencap in collaboration with NHS England learning disabilities programme has produced a fantastic new campaign and set of resources about the Learning Disability Register, Annual Health Checks, and Summary Care Records.
This is all about encouraging people with a learning disability to get better healthcare, by letting people know that doctors and other healthcare workers can provide extra support and advice. The main message is to make sure you tell your doctor that you have a learning disability, so that they can add you to their register.
Please help us to share this important message! – Tell your doctor you have a learning disability and they can check if you are on the learning disability register. If you are not, they can arrange for your name to be added. This means you will be offered extra support to make things a bit easier. And, importantly, you could get an Annual Health Check. This information can be shared with other doctors and nurses, so they can make things easier for you too.
The campaign is called ‘Don’t miss out’ www.mencap.org.uk/dontmissout and the hashtag for social media is #dontmissout
The direct link to the guides and resources is: https://www.mencap.org.uk/advice-and-support/health/dont-miss-out/dont-miss-out-guides
The resources include:
- main guide about joining the learning disability register and why it’s so important;
- guide for supporters of people with a learning disability about the register, Annual Health Checks, and Summary Care Records;
- template easy read letter to complete and give to your doctor about joining the learning disability register;
- easy read guide about joining the learning disability register and why it’s important.
There’s also a really snappy animation:
Mark Neary has a recurring nightmare.
He dreams that six months after his own death, his son Steven – who has autism and learning disabilities – will end up in a residential unit like the one in which he was once illegally held.
Health Education England working across Kent, Surrey and Sussex are offering funded places for the courses listed below.
LD KSS Flyer PG
Email firstname.lastname@example.org to discuss making an application.
People should be supported to live individually, with a friend, or as a couple, argues Choice Support CEO Steven Rose.
You can read the blog here:
Background Constipation can lead to serious health issues and death. This systematic review summarises international research pertaining to the prevalence of constipation in people with intellectual disability. Method Studies published from 1990 to January 2016 were identified using Medline, Cinahl, PsycINFO, Web of Science, email requests, and cross-citations. Studies were reviewed narratively. Results 31 studies were identified. Constipation rates of 50% or more were reported in 14 studies; 21 studies reported rates over 33%. Based on the most representative study, over 25% of people with intellectual disability received a repeat prescription for laxatives in one year, compared to 0.1% of people without intellectual disability. Constipation was more common in those with cerebral palsy and profound intellectual disability, and associated with immobility but not age. Conclusion Constipation is a significant issue for people with intellectual disability across the life course and should be actively considered as a diagnosis in this population.