Article: Narrative competence in caring encounters with persons with profound intellectual and multiple disabilities

If part of being a person is our ‘story’, what about people with profound intellectual and multiple disabilities who don’t have language? This article by Anita Gjermestad includes 2 profound examples of how healthcare professionals became better able to understand their patients; Kate Sanders remarked: it ‘exemplifies person-centredness’. Daniel Marsden commented ‘I was struck by the enthusiasm to engage staff in actively listening to this traditionally disenfranchised group of people. The practice in this regard has many implications across the world and in particular in the context of the UN Convention on the rights of persons with disabilities.’

Read the article here.

Care Knowledge: In Good Health

NHS England’s Building the Right Support (2015) outlined a clear national service model for people with learning disabilities that included annual health checks for everyone aged over 14 years. It was part of a broader ambition to ensure that people with learning disabilities ‘get the support they need to live healthy, safe and rewarding lives’.

Two years on, the national figures show a positive shift in the numbers receiving checks but we’ve still got some way to go. It needs everyone to be on board – every service provider across every locality – to make it happen.

Bradford, like other Trusts, started to focus on health checks back in 2008, in line with national guidance. Our community-based health teams were supporting health and care providers to ensure checks were happening, to pick up any changes in people’s presentations earlier and provide support earlier, to avoid hospital admissions.

The latest statistics now show 64 per cent of people aged 14 years and over across Bradford and Airedale received a health check last year. This compares to a national average of around 44 per cent (source: Mencap).

Read more here.