FPLD: Hidden in plain sight: dementia and learning disability

This report highlights how more that a million of people with learning disabilities have become invisible in national dementia policy.

People with a learning disability are three times more likely to develop dementia than the rest of the population. But a review of current government strategy has revealed that their needs are barely mentioned.

It is vital that 1.4 million people in Britain, identified as having a learning disability, are not invisible. We want to work with policy makers and services to make sure their needs are clearly recognised and they are provided with appropriate and targeted support as they age and if they develop Dementia.

Read the report here.

University of Bristol: LeDeR Programme: Progress update

The questions raised in the House of Commons on 8 May and the corresponding answers, suggested the publication date of the report had been decided by the LeDeR team at the University of Bristol. This was not the case. All communication about the report, prior to and subsequent to its publication, was directed by NHS England, as was the date of its publication.

The number of completed reviews prior to November 2017 was limited as is evidenced in the report. Over recent months the number of completed reviews has been increasing. In April we received 55 completed mortality review reports. We are now starting to collect more evidence about the impact of the review process – notably actions that are being taken locally as a result of the mortality reviews.

Read the full statement here.