We’re looking for real-life stories of RNLDs

HEE KSS have been asked if we can engage and add to this website:


Do you employ any RNLD’s, that are willing to share their real-life stories to get added to this site. In particular, views from the perspective of nurses working in the independent, charity and private sectors would be helpful.

All responses to Emily Newsom – Emily.Newsom@hee.nhs.uk


Do you work with people with a learning disability? Or do you have an intellectual disability yourself? Are you interested in end of life care?

If so, you might like to share your views of a toolkit we are developing to help young people make care plans for when they are not able to express their view and when they have a life limiting condition. People with learning disabilities and their families may need help to think through questions about end of life. They may also find it more difficult to talk with care-givers about their wishes for future care.

The University of Surrey is working with Health Education England in Kent, Surrey and Sussex to develop a toolkit to help care-givers make advance care plans with children and young people with learning disabilities and their families.

To make sure the learning materials are as good as possible, we need the views of young people with learning disabilities and the people who work with them to take part in a workshop at the University of Surrey, to have your voices heard and make a real difference in this very important but often neglected area.

The workshop will be held at the University of Surrey on Tuesday 11th July from 1 to 4pm. We can pay travel expenses and will provide lunch.

If you are interested to attend, please email Matthew Peacockm.peacock@surrey.ac.uk – to book a place. We look forward to working with you.

Very best wishes, Ann Gallagher, Professor of Ethics and Care

7 days of Action: A Trade in People- Days 1-4

The third 7 days of Action is about money, business and the inpatient healthcare economy. It’s about a kind of business that is becoming increasingly significant and increasingly powerful. It’s about a new kind of trade and new kind of commodity. We did think we’d start this week by looking at the work we’d done in analysing the finances of the inpatient healthcare economy and by giving you an overview of our report A Trade in People: the inpatient healthcare economy for people with learning disabilities and/or ASD. But the problem with starting a week about people with statistics and budgets, is that you forget about the person and their experiences. So we are going to start this week by asking you to stop and think for a moment. We are going to ask you to imagine what it must be like to be detained behind the closed doors of an Assessment and Treatment Unit.

You can catch up on the first 4 days here:


Should I stay or should I go?

This week saw the publication of a piece of research by Elaine James and the Adult PSW Network Co-Chairs Rob Mitchell and Mark Harvey. The research paper titled ‘An inquiry by Social Workers into evening routines in community living settings for adults with Learning Disabilities’ looks at the life when living your life in care settings. This researched involved the collective efforts of overs 70 social workers wanting to understand the reality of the of choice and real lives.

Paul Richards  ( @Heavy_Load ) of Stay up Late and Gig Buddies fame agreed to write a blog for APSW challenging some of the concepts that lead to such arrangements and suggesting what we need to do.

You can read the blog here:



Apprenticeship Standard for Advanced Clinical Practitioner – Consultation open

The Advanced Clinical Practitioner Trailblazer group is pleased to announce that it has opened a consultation on the draft Apprenticeship Standard.

To give maximum opportunity for everyone to contribute, the consultation is available as an on-line survey at:


The consultation opened on 13th June and will close on 25th July 2017.

Could you please put this information through your networks and forums – thank you!