Children and young people (CYP) with learning disabilities (LD) are a vulnerable population with increased risk of abuse and accidental injury and whose parents have reported concerns about the quality, safety and accessibility of their hospital care. The Care Quality Commission’s (CQC) view of best practice for this group of patients includes: access to senior LD nurse provision; a clearly visible flagging system for identifying them; the use of hospital passports; and defined communication strategies (Glasper, Comp Child Adolesc Nurs 40:63-67, 2017). What remains unclear is whether these recommendations are being applied and if so, what difference they are making. Furthermore, what we do not know is whether parental concerns of CYP with LD differ from parents of other children with long-term conditions. The aims of this study were to 1) describe the organisational context for healthcare delivery to CYP with LD and their families and 2) compare staff perceptions of their ability to identify the needs of CYP with and without LD and their families and provide high quality care to effectively meet these needs.
Category: learning disability
Top academics call for summit on staffing crisis in learning disability nursing
Top academics in the field of learning disability nursing are calling for a high-level meeting to discuss staffing in the speciality, which faces a recruitment and retention crisis.
LDE: Enough is enough
By Tracy Hammond
LDE has commented before about the death of Danny Tozer and sadly, we’re not convinced that across the sector, services are any safer, or care standards any better since this tragic event.
Once again, we are writing about how people should be safe and free from abuse in services, when we should be aspiring to so much more for people.
University of Surrey: Easy Read report on End of Life Care
Learning disability and debt – Money Advice Trust blog post from Disability Rights UK
In this guest blog post, Jason Jaspal from Disability Rights UK discusses the challenges that people with learning disabilities can experience around managing their finances, and explains why they have been working with the Money Advice Trust on a new training course for advisers.
