Author: dmarsden49

Aspire Free School Petition

/ dmarsden49 / Leave a comment

Aspire is a Kent based team who are campaigning to create a free school to transform the life opportunities for children and young people with Autistic Spectrum Conditions. There mission is to give children and young people the support they need to learn, thrive and succeed in life as independent adults in modern Britain.

To support the Aspire project you can:-

a) click on the picture below to find out more about the projectaspire

 

b) Check their website by clicking here and

c) Sign the petition to the Secretary of State for Education Nicky Morgan, by clicking here.

Learning Disability Mortality Review Consultation

/ dmarsden49 / Leave a comment

The new Learning Disabilities Mortality Review (LeDeR) Programme that has been commissioned by the Healthcare Quality Improvement Partnership (HQIP) on behalf of NHS England.

The aim of the Programme is to make improvements in the quality of health and social care service delivery for people with learning disabilities and to help reduce premature mortality and health inequalities faced by people with learning disabilities, through national and local reviews of deaths.

The Programme has now started, and we would appreciate your views about a number of aspects of the work.

We have set up a consultation that runs from now until 10th August to find out your views about:

•             The core data to be collected at the notification of a death, at an initial ‘light touch’ local review, and in a full multidisciplinary review of the death of a person with learning disabilities (LD).

•             The criteria for which deaths are would require an initial ‘light touch’ local review only, and which will require full multiagency review.

•             The definition of key terms used in the Programme.

•             The standards against which ‘best practice’ will be measured.

The link to the online consultation is at:

https://sps.onlinesurveys.ac.uk/learning-disabilities-mortality-review-programme-stakehol-2

We would be grateful if you could please contribute to the consultation by following the link and completing as much or as little of the consultation as you are able to. Please feel free to send on to others you know who may be interested in participating. Thank you.

 If you have any queries about the consultation, or would prefer a paper version of the consultation questions, please contact Pauline.Heslop@bristol.ac.uk and we will send this to you.

Anna Marriott

IHAL 

Tizard Lecture – Dr Janet Carr 5th September 2015

/ dmarsden49 / 1 Comment

As part of the University of Kent’s 50th anniversary celebrations, the Tizard Centre will be hosting a lecture followed by an informal reception on Saturday 5 September at 12 noon. This is being held in the new Templemen Library lecture theatre, University of Kent, Canterbury campus.

Dr Janet Carr, OBE. pioneering psychologist, will be giving a talk based on the findings of her 50 year research project of people with Down’s syndrome that became a lifelong commitment to changing attitudes. After half a century and at the age of 87, Janet Carr has just completed the world’s longest running research project in to people with Down’s syndrome. The longitudinal study began with 54 babies born in the year to November 1964 and living with their families in South-East England. Dr Carr’s aim was to establish the children’s educational needs using intelligence tests such as pattern-matching. The research, which began when the babies were six weeks old was initially intended to last just 10 months but the young researcher wanted to look longer term and explore family interactions.

The lecture is free and open to all and we do hope that you will be able to join us at this event. To book a place please email J.Ruffels@kent.ac.uk Tizard event 5-9-15