“The UCL Unit for Stigma Research is conducting a study investigating how people with learning disabilities respond to being treated unfairly by others. We have developed a new measure to help understand this, the Responding to Intellectual Disability Stigma (RIDS) tool, and are looking for adults with mild to moderate learning disabilities to participate in a pilot study. This study has been designed from the outset with input from self-advocates with learning disabilities.
Taking part will involve a conversation supported with photographs by video call (via Skype, Zoom or Microsoft Teams, whichever the individual might be familiar with – support will be provided to access as necessary) with a researcher to discuss situations in which people with learning disabilities might be treated unfairly. Participants will also be asked questions relating to their well-being and self-esteem. We expect the video call will take up to an hour. To say thank you for their time contributing to this research, participants will be provided with information and resources to help them stand up for themselves when treated unfairly.
The RIDS study is being undertaken by Abigail Goldsmith-Sumner, a trainee clinical psychologist at UCL, as part of the wider Standing Up For Myself (STORM) project that the unit is running. If anyone in your organisation is interested, please pass on their information to Abigail, who will contact them for an initial discussion to explain the research in more detail and obtain informed consent. In addition, if you, your organisation, or a supporter/ family member would like more information, Abigail would also be happy to organise a phone or videocall to discuss.
Thank you for your support in advance. We hope this research will allow us to further understand the impact on individuals of experiencing stigma, and how interventions designed to improve the lives and wellbeing of people with learning disabilities may be of benefit.”
As described by Grace McGill, who is an Eye Care Champion with SeeAbility: “The London Eye Care Champions are a relatively new team. We are lottery funded and we enable individuals to receive the same eye care as anybody else. We do this by awareness raising and training. If you can get a sight test right for someone with a learning disability then you can get it right for anyone!”
In this podcast, Grace McGill and Lisa Donaldson (head of eye health at SeeAbility) speak with Richard Whittington and Zoe Richmond from LOCSU (Local Optical Committee Support Unit) about the pathway to eye care for people with learning disabilities.